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Archive for the ‘Cerebral Palsy’ Category

My Left Foot

In Cerebral Palsy, Education, Family, Movies on September 6, 2011 at 6:50 am


This is a great biopic about Cerebral Palsy. Daniel Day-Lewis won an Oscar for his portrayal of Irish writer Christy Brown, who was born with cerebral palsy. Without having any intention of bringing up domestic experience, I believe Daniel Day Lewis played marvelously. I’m convinced that he really tried hard to study everything about CP (Cerebral Palsy, not Cut/Paste) since he had to do most of anything using only his left foot. I read once that Lewis remained in his wheelchair between takes in order to absorb the character he portrays. “Day-Lewis’s portrayal of Christy Brown and his handicap is so convincing that it is difficult to believe that Day-Lewis is not actually stricken with Cerebral Palsy” – Amazon

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Another trip to the hospital

In Cerebral Palsy, Family, Health on March 31, 2011 at 10:06 am

 

His second hospital trip

 

As explained previously, Ariq had been hospitalized twice due to his fever and vomiting. Unlike his first hospital sleep-over, the second hospital trip was accompanied by seizure. It was a couple of weeks after Eid ul Fitr 2010 when this happened. That afternoon, I went out with my wife and my younger brother on a double date to Gandaria City. We went home around 7pm and parted near Lebak Bulus soccer stadium where my wife took a taxi home while I continued the drive to my mom’s house, my brother dropped me off there. I remember asking my wife to join me but she refused because she preferred to go home, she said that she felt bad for leaving them too long.

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Our Precious Ariq

In Cerebral Palsy, Family, Health, Medical on March 30, 2011 at 8:07 am

The Day Our Ariq Rushed to the Hospital


The charming first son

 

It’s been much too long since the last time I wrote for this blog. Many things happened during my absence and all evolved around our beloved first son. He’s been having frequent convulsion (many refer this as an epileptic seizure: occasionally referred to as a fit, is defined as a transient symptom of “abnormal excessive or synchronous neuronal activity in the brain”) due to his cerebral palsy. This seizure occurred monthly and with a similar pattern. There’s more, he was hospitalized twice because of this.

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I’m feeling grateful for Ariq’s disability

In Cerebral Palsy, Education, Family, Health, Medical on January 26, 2010 at 12:48 pm


Caring for children with special needs

Having a child with special needs, for some people, can be disastrous. We commonly use the term of special needs to describe the limitations as well as the inabilities possessed by such children. Children who suffer from special needs, both as a result from birth defects and injuries may experience such things from mild disabilities, developmental delays until mental retardation or even psychiatric problems. In other words, the disabilities can be medical, developmental, learning disabilities or even all three of them depending on the seriousness of the case.

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Dysarthria, A Speech Disorder

In Cerebral Palsy, Family, Health, Medical on July 7, 2009 at 12:36 pm


Communication, understanding and patience, the three keys to success

Today, I went to Ariq’s school to get his school report. I was glad that he really improves well; however, there is a little note from his therapies that we had better give him more drills in two-way communication. I don’t mean to say that he cannot communicate his ideas or thoughts. In fact he does, although it is only those of habitual ones. He is able to say such things like “Kakak mau makan” (I want to eat), “Kakak mau minum susu” (I want to have some milk), “Kakak mau keluar” (I want to go out), “Pergi kemana” (Where are we going?), “Kakak mau mandi” (I want to take a bath) and many others. Ariq also understands simple commands like “Ganti baju” (Change your clothes), “Buka celana” (Pull down your trousers), “Tutup pintu” (Close the door), Ambil bukunya” (Get the book) and so on.

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